Patient Representative: Janice Hodgson

Supporting the CCTG Audit & Monitoring Committee and Clinical Trials Committee

Residing in Newmarket, ON | CCTG Patient Representative since 2015

"I tell patients that participating in a clinical trial is an opportunity to advance research and potentially help others and themselves. CCTG realizes that patient advocates are one of their greatest assets in communicating to members of the community at large."

In 2005, Janice was diagnosed with breast cancer which ultimately focused her volunteer work in the area of advocacy and prevention, providing hope and encouragement to those affected by cancer. She has worked to raise awareness of the importance of a healthy lifestyle and screening, volunteering as a patient advocate with the Canadian Cancer Society (CCS). During her time working with CCS Janice held a variety of leadership roles and was a founding member of the CCS Ontario Public Issues Team advocating for stricter tanning bed regulations in Ontario.

Janice was particularly interested in cutting-edge research as the Community Representative on 11 Research Grant Review Panels where she enjoyed learning about novel research taking place across Canada. Then in 2015 Janice joined the CCTG Patient Representatives Committee as a patient advocate on the Breast Disease Site Committee, representing the perspective of patients and their families in the development and delivery of clinical trials ensuring the patient perspective is represented in the advancement of research in the treatment, care, and prevention of cancer to improve patient outcomes.

In August 2018 until February 2021, Janice was a member of the Data Safety Monitoring Committee. Janice enjoyed getting down into the detail of the current status of a trial—adverse events, interim analysis criteria, and accrual from the Patient perspective. In February 2021, she joined the Clinical Trials Committee where her interest and passion in research could continue to be realized by reviewing clinical trials developed by CCTG. Janice is also the Patient Representative on the Audit and Monitoring Committee.

"As a patient representative I am working directly with health care professionals and researchers to ensure the public perspective is represented in the advancement of research in the treatment, care, and prevention of cancer so we can improve patient outcomes."